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93
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rare disease
Patient Access
MINI Act Could Shield Patients from Unintended Consequences
June 24, 2024
Blog
Patient Access
Just 1% of Adults Believe Nation Handles Mental Health Well
May 29, 2024
Blog
Patient Access
New Roadmap Identifies Support Opportunities for Rare Patients
May 20, 2024
Blog
Value & Innovation
A “MINI” Act Could Be Big for Patients
April 24, 2024
Blog
First Awareness Day Gives Hope to IgG4-RD Patients
April 4, 2024
Blog
Congress Boosts “Hope” for Infants with Rare Diseases
March 7, 2024
Blog
Patient Access
Future Treatments Excite Rare Disease Patients & Providers
February 29, 2024
Blog
Patient Access
First Gene-Editing Treatment Approved
February 14, 2024
Blog
Year In Review: The Conversations That Shaped Health Policy in 2023
December 21, 2023
Blog
Patient Access
The ORPHAN Cures Act’s Promise for Rare Disease Patients
November 29, 2023
Blog
Thyroid Eye Disease in the Spotlight
November 14, 2023
Blog
Veterans with hATTR Amyloidosis Need Access to Critical Meds
November 10, 2023
Blog
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