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Displaying 59 results for: rare disease

The ORPHAN Cures Act’s Promise for Rare Disease Patients

November 29, 2023 Blog

Thyroid Eye Disease in the Spotlight

November 14, 2023 Blog

Veterans with hATTR Amyloidosis Need Access to Critical Meds

November 10, 2023 Blog

Overcoming Barriers for Patients with Rare Vision Conditions

August 1, 2023 Blog

Value & Innovation

Updated: Putting Genetic Science to Work for Patients

July 25, 2023 Blog

Fight Continues to Expand Federal Benefits for Huntington’s Disease

April 18, 2023 Blog

Access to Care Shouldn’t be Rare

February 28, 2023 Blog

Value & Innovation

Rare Disease Patients and Clinicians Gain Traction

January 25, 2023 Blog

Veterans Battling Amyloidosis Deserve Better

November 11, 2022 Blog

Value & Innovation

New Rare Cancer Treatment on the Horizon

October 25, 2022 Blog

Urgent Action Paused by Prior Authorization

Vikas R. Dharnidharka, MD, MPH

August 8, 2022 Blog

The Cardiovascular Health Policy Summit in Five Quotes

June 16, 2022 Blog

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