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Displaying 58 results for: rare disease

Value & Innovation

STAT

There’s no ‘Moonshot’ or ‘Warp Speed’ for rare diseases. There should be

Article

Unlocking Codes for Rare Disease Patients

April 21, 2022 Blog

Value & Innovation

Alliance for Patient Access

Rare Disease Advisory Councils Give Patients a Voice

Video

Value & Innovation

Cystic Fibrosis Engagement Network

Rare Disease Advisory Councils

Video

Rare but Not Alone: 1 in 10 Live with a Rare Disease

February 28, 2022 Blog

Value & Innovation

Innovation Brings Rare Disease Patients Tears of Joy

Johana R. Fajardo, DNP, ANP-BC

February 10, 2022 Blog

Raising the Profile of Rare Diseases

January 6, 2022 Blog

A Rare Disease Captures the World’s Attention

October 26, 2021 Blog

Value & Innovation

Proposed Programs Could Speed Up Drug Approval for Rare Diseases

October 1, 2021 Blog

Value & Innovation

Genetic Testing and Counseling Offer Answers for Rare Disease Patients

September 29, 2021 Blog

Economic Impact of Rare Diseases Tops $960 Billion

March 30, 2021 Blog

Amyloidosis: Rare Disease, Rare Courage

February 26, 2021 Blog

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